This morning I asked one of Kevin's doctors how long they expected him to stay where he is now. There is no way to know for certain until we get a diagnosis of what is causing his trouble, we are waiting for some test results and that could be in a few days. Once we know what we have they will be able to come up with a plan to treat him. The two biggest concerns right now are lung and kidney function. His breathing has improved but he is still not breathing without help. That is also what is keeping us from being able to hold him. There are also some factors with the levels in his kidneys that will keep him here. If they can get that nailed down, there is a good chance that he can at least be transferred to a hospital closer to home. Of course a big piece of that puzzle is getting as diagnosis.
Another significant problem seems to be an absent corpus callosum. This is a part of the brain that may be responsible for his midline defects (eyes, nose, mouth, genitals etc). Of course the only look they have had of his brain so far is an ultrasound but I don't think the Dr. would have mentioned it if he didn't think it was significant.
In the meantime, we're just waiting and helping him where we can. He sleeps a lot and seems pretty comfortable. We have learned a lot in the first 3 days, we should learn more in the next 3.
9 comments:
Kevin, I am reading all about Little K's first days here. Sure is a lot going on. Just wanted to say hi and let you and Tina know we are reading your updates and are thinking about all of you.
Kelly
Kevin and Tina, I pray that a diagnosis will come soon. I'm keepig a candle burning for little K at our church. Please tell him that A. Sharolyn and U. Don love him and are looking forward to meeting him next month!
Tina, Kevin, Jon & Anna Beth,
Your family is in our prayers. I pray you have answers soon, so Special K will be on his way to recovery. Tina you made it to August and then some. Take care. We are Penny's Mom & Dad in law.
Diane & Bob
kevin and tina david and i have been reading your news and are thoughts and we are here if u need to talk love u all christie and david.
K&T, A message from Aunt Vada on the family site........
I went to the site , read, and tried to leave a message. Guess I am not smart enough for this part of computing. But, will someone please let Kevin, Tina and family know they are all in my thoughts ane prayers. So sorry for my inability to know how to use the site.
Hey Uncle Kevin and Tina... Just wanted to say Hi, I am at work and Dr. Morreale was asking how you all are doing, I showed her Little K's pictures. She was also wondering if Tina received her Rho Gam shot before leaving the hospital, since it was a shorter stay? Thinking of you all.
Hey Kevin & Tina,
I'm not very good with words sometimes...wish I could just give you ALL a big hug. We're all praying for Little Kevin. Let us know if anything needs to be done back home. Love, Teletha
Kevin & Tina,
You are all in my thoughts and prayers. I know Little K will make it through this struggle. Just keep faith and God. You know God has the answer to everything. Keep us all posted on how things are going. I know this is so hard but it will bring you closer to God. Love you both very much.
Just wanted you to know we are thinking of you.
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